“Many memories are created through heart-based events, so it’s possible that dementia patients may have a repository of memories that reside inside their hearts.”
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“Many agencies, home health providers, churches, and physicians are reluctant to recommend services that address end of life issues. It is sad and confusing why anyone would not give their friends, clients, or customers the guidance and comfort that trained professionals can offer.”
“Does the contract allow you to have access to your own doctors? What is the facility’s position on VSED? If you enter hospice, will they commit to providing adequate pain relief? If you live in a state with MAiD, will the facility cooperate?”
“Many of the individuals around the bedside barely know each other, and this becomes an environment of misinformation, mistrust, and hidden agendas about substantial financial and estate issues … as ex-wives and ex-husbands, half siblings who never knew each other, long-time same-sex partners (surprise, who knew?), in-laws, out-laws show up at the bedside.” — Dr. Edward T. Creagan, M.D.
“One of our team nurses shared that her only training on caring for the dying involved a lecture from a funeral home manager.”
“I dislike the phrase, ‘They failed treatment.’ The amount of judgment within this phrase is damaging.”
“Once you come up with a few items that bring comfort and involve the senses, it becomes easier to construct an individualized plan to share with those who are near and dear to our hearts.”
“To be ‘death positive’ doesn’t mean that you are happy about dying.”
“One facility used the term “provider-hastened death” and stated that it encompasses euthanasia.”
“Whose wishes for his medical treatment were we to honor? Those of my father back when he was a healthy, highly functioning geneticist? Or those of the simpler, weakened man my father had become?”
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