This post describes the disease that killed Woody Guthrie–Huntington’s Disease–and provides the story of a man who struggled with the disease until he could bear it no longer.
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You may not have heard of the Disability Integration Act of 2019, but it is worth the support of the Final Exit Network (FEN) and the individual support of all people who favor a self-controlled death
In a newly-produced short film, Philip Nitschke argues for a non-medical model to replace the medical model for a self-controlled death. His argument is compelling. If we have a right to a self-controlled death, we should not have to ask permission from doctors to honor that right. As he has said, “You don’t have to be a doctor to understand dying.”
A recent article in the Washington Post produced by Kaiser Health News and written by Melissa Bailey asserts that openly discussing a self-controlled death, no matter how rational the discussion, is viewed by some people as “subversive” or, at least, out of the ordinary or suspect.
Asunción Álvarez del Río, PhD, a FEN member in Mexico City, reports on the status of aid in dying in Spain.
Recently, Derek Humphry wrote about the words we use to discuss end-of-life concerns in the US, focusing on the appropriateness of the term “suicide.” He did so, in part, to stimulate a discussion about the words we use. Like Humphry, I have no personal problem with the use of the term suicide–it accurately describes death by our own hand–but I resist it for several reasons.
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